Things are still going well around here. This is a great hospital. It is warm, inviting and extremely kid-friendly (honestly, I wish grown-up hospitals were this cool!). Since Colin is not hooked up to monitors or actually “sick”, we are able to move around and do a lot more than last time we were here. There is a play room on the hall (which we have not been to yet) and on the top floor there is a play garden. It is outdoors, open to the air and sun. We went up there today. They send us with a pager like you get at a restaurant, in case they need us back in the room. It was a beautiful day, and it is encouraging to know that we can take a break and go on a walk whenever we want. There is also a department in the hospital called “Child Life.” Basically, they are here to make the stay enjoyable. They provide toys, and if needed, would come stay with Colin while I went to go do something so he would not be alone. (Luckily Colin also has 2 grandmas in town to do the same thing!) Since they know we are here for a long stay, they seem to be going the extra mile to make us comfortable. Yesterday with the big room, today with extra TOYS!
Many of the nurses and therapists recognize us from our last visit. Everyone who remembers him is impressed with how much he has grown in the last two months. And all of them remember how adorable and fun he was to have as a patient! He has a great reputation… for being the happiest and cutest baby ever. I love that. I think he is precious… but it sure is fun to have every person who enters the room mesmerized by my son!
We noticed today that as we walk around the hospital we keep saying “well that will be good when he’s older.” It’s actually really annoying that a statement like that does not seem odd. Really… it’s a little crazy that I can get excited about future hospital visits – EXPECTING that, of course, we WILL probably be back. We have been told that, on average, a person with CF may spend some time in the hospital every couple of years. And this is our second time in two months. I hope that it does not continue to be this often… but we do assume we’ll be back again. And, at least, there are fun things to look forward to next time around and as he grows up.
Tomorrow is Saturday, which means DJ is going to get to come spend the whole day with us. Colin loves spending time with his daddy, and he has not had the chance to play with him all week! So… we hope that tomorrow is going to be another good day for The Fishes.
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